Sanusi Fauzat, a school head, consultant, and business owner, candidly reveals the profound impact of lupus on her life.
“Fatigue is one of the major symptoms of lupus,” she shares.
recounting how it has taken a toll on her professional engagements and personal well-being.
The mental health ramifications are stark, as she admits, “I lost interest in people and had memory loss at some point. I have joint pain, skin rashes, and fever.”
Navigating the labyrinth of lupus diagnosis, she reflects on a journey marked by numerous investigations before finally receiving a lupus diagnosis.
What is Lupus, and how is it diagnosed?
Lupus, formally known as systemic lupus erythematosus (SLE), emerges as a chronic autoimmune disease, disrupting various body parts. The immune system’s misguided attacks on healthy tissues result in inflammation and organ damage, presenting a spectrum of challenging symptoms.
Lupus presents a wide range of symptoms, making it a challenging condition to diagnose.
According to Dr. Faeez Usman Ahmed, lupus is being dubbed the “great imitator” due to its symptoms overlapping with those of other illnesses.
“Diagnosis entails a meticulous blend of physical examinations, blood tests, and imaging studies. While the exact cause remains elusive, factors such as genetic predisposition, hormonal fluctuations, and environmental triggers contribute to its development.” He says.
Lupus Disease: The statistics
Lupus is statistically significant in Nigeria According to the College of Medicine, University of Ibadan, over 100,000 cases are identified annually.
It affects 1.5 million people in the United States and five million globally, according to the Lupus Foundation of America.
The demographic impact reveals a higher prevalence in people between 15 and 45, with varied rates among different racial groups.
Lupus Disease: The Challenges
Dr. Faeez emphasizes the incurable nature of lupus but underscores improved prognoses through modern medicine, with 80–90 per cent of SLE individuals expected to lead normal lives.
“Management involves healthy lifestyles, regular consultations, and adherence to prescribed medications. The collaborative efforts of patients and rheumatologists specializing in autoimmune conditions play a pivotal role.” He says.
However, the journey is not without challenges. Dr. Faeez acknowledges the scarcity of specialists, geographical distances, expensive medications, and routine tests that hinder the accessibility of support groups and counselling for emotional well-being.
Finding help through Lupus
In the face of these challenges, Sanusi Fauzat emerges as a beacon of hope. Beyond her struggle, she has forged a community of 500 participants to support one another in navigating life with lupus.
As Sanusi Fauzat aptly puts it, “Being off the job, I get funds from friends and family for treatment.”
Her journey as a lupus survivor underscores the power of community and the imperative of education. Dr. Faeez echoes this sentiment, urging lupus victims to actively educate themselves and others about the disease.
Dr. Faeez advocates stress management techniques, joining support groups, and focusing on personal strengths.
